Day 4: Friday, September 29, 2023

9:00 Registration and Breakfast
Theme: What is Most Important to Us
9:15 Patient and Family Panel – Crystal Burke and Day Burke (Patient Advocates)
10:00 The Healing Power of Story Telling – Mark Yaconelli
11:00 Coffee break
Theme: Research and the Future: Work that is Underway
11:30 Dr. Jennifer Zuccaro – Toronto Research Plans
11:45 Dr. Sophie Boettcher – Future Research Plans
12:00 Dr. Kathrin Neuhaus – EPBC: Where Are We Now and What is Next for This Group?